Hello! :-) it has been such a long time since I have written on my blog... I hope that everyone had a very Merry Christmas and that y'all have a wonderful New Year.
On January 6th 2012 I had my 19th hip surgery... this year January 6th 2013 it will have been a full year since my surgery.
I have been going to therapy and I have been trying to get my hip back to as normal as it can go... and it is hard to do.. and it hurts A LOT but I think that I am doing good with the progress.
I am so glad that I am actually able to walk.. even though I am not allowed to do any school dances or PE... that is perfectly fine with me because I don't like to sweat at all!! ;-)
I am so thankful for my supportive family and especially for my Mom because she has never stopped being my #1 Cheerleader and my leading example.
'Til next time,
Miss Hip and Sassy (Bailey)
p.s. this year I will be 14! :-) woo hooo :-)
Wednesday, December 26, 2012
Saturday, March 17, 2012
...and....We're walkin!
HOORAY!!!! We're walking! Yes, Dr. Rosenfeld...when she came home on Wednesday she started doing it all on her own!
You know that moment when your kids were little and you were waiting for them to take their first steps, you would watch them eagerly...camera in hand? You would hold your breath and just pray that they didn't fall? How lucky are we that we get to have this moment repeat itself throughout Bailey's life? :)
She would shoot me if I posted the video so you will just have to take my word for it...she is up on two feet! YAY! I am also impressed with how she looks when she stands on both feet...this may sound odd so allow me to explain. Prior to surgery, you could see an obvious protrusion of her hip on the left side...now, she looks to be more svelt and even on both sides.
Now, it is back to school for half days for just a bit to help her build her stamina and get back in the swing of things. She will be going to school in her wheelchair...I don't trust those lil toots not to knock her over. You would think they would be nice but apparently empathy isn't something taught in most households. Even "friends" that have spent the night, swam for endless hours, etc. are pretty mean. That's okay though...as I have told Bailey...Karma is a strict mistress!
Can't wait to see my Bay jumping in the pool and running around like a (almost) 13 yr old girl should do!
Blessings to you and yours from me and mine...!
XOXO from the Hip and Sassy Family
You know that moment when your kids were little and you were waiting for them to take their first steps, you would watch them eagerly...camera in hand? You would hold your breath and just pray that they didn't fall? How lucky are we that we get to have this moment repeat itself throughout Bailey's life? :)
She would shoot me if I posted the video so you will just have to take my word for it...she is up on two feet! YAY! I am also impressed with how she looks when she stands on both feet...this may sound odd so allow me to explain. Prior to surgery, you could see an obvious protrusion of her hip on the left side...now, she looks to be more svelt and even on both sides.
Now, it is back to school for half days for just a bit to help her build her stamina and get back in the swing of things. She will be going to school in her wheelchair...I don't trust those lil toots not to knock her over. You would think they would be nice but apparently empathy isn't something taught in most households. Even "friends" that have spent the night, swam for endless hours, etc. are pretty mean. That's okay though...as I have told Bailey...Karma is a strict mistress!
Can't wait to see my Bay jumping in the pool and running around like a (almost) 13 yr old girl should do!
Blessings to you and yours from me and mine...!
XOXO from the Hip and Sassy Family
Hey everyone, Miss Hip and Sassy here!!!
Mom was supposed to post this LAAAASSSTTTT Week! A little late, but here it is anyway. XOXO
Hey everyone!!! I just wanted to say "Hi" and say that recovery is coming along, and I think that I am almost to the finish line!!! Boy!... this has been one crazy ride!! But I am thankful that I have God and my family and my friends to help me and to keep me going till the finish line!!!
Hey everyone!!! I just wanted to say "Hi" and say that recovery is coming along, and I think that I am almost to the finish line!!! Boy!... this has been one crazy ride!! But I am thankful that I have God and my family and my friends to help me and to keep me going till the finish line!!!
I am excited because next week is Spring Break and I am going to the zoo with my little sister and the livestock show and carnival with my family... I am excited to go shopping and eat junk food!!! But then I am nervous because next week on Wednesday I am going to the doctor and I will start taking my first steps again. :-) I am happy to walk but I am nervous about starting again because I havent walked in 3 months and its going to be hard the 1st time but I bet that I will like it. :-) I am also excited to start walking so that I can get my sassy shake back (mom says, "WHAT?!?!?") and so that I can baby-sit again and so that I can play with dogs!!! :-)
I hope that all of y'all have a good week and that y'all enjoy Spring Break next week. :-)
love y'all!!!
Love,
Miss Hip and Sassy (Bailey)
Tuesday, February 7, 2012
DDH, PAO Surgery...and Post Op X-Ray
Many of you have asked what exactly is PAO surgery...here is the best link I could find.
http://www.wfuhip.com/PAO.html
Most of the people that have had this surgery are women in their late twenties and early thirties. They go on to run marathons, have children, dance and the like. I have researched this a lot, and whenever I see their pre-op x-rays, I think..."WOW! I wish Bailey's would have looked like this...!" It seems that Bailey's case was quite a bit different than those that I have read about online. She had what I think they term a complete dislocation. She had NO hip socket at all, and all of the surgeries that she had when she was a toddler were to build a hip socket for her. I know that Bailey will go on to experience all of the great things in life, and she will be the topic of conversation by the pool with her surgical scars. (Which by the way, she is very eager to keep...!)
Bailey is certainly on the younger end of the spectrum for this surgery...but this was the last step before a total hip replacement. Below is her post op x-ray...
As I have mentioned in earlier posts...Bailey's DDH could have and should have been caught during infancy. In my (professional mom) opinion, the tests that the pediatricians perform to look for this issue is quite subjective. I feel strongly that the infants should be given an ultrasound to check their hips vs. doctors moving their legs to TRY and feel a click. My younger daughter had an ultrasound at 4 weeks of age...she too had DDH, we put double diapers on her for several weeks and her hips are perfect...! (I understand now that they no longer do this, they go to the Pavlik Harness.)
Now that Bailey is getting stronger, my quest will be to increase awareness and to rally for better testing. While I am told that a small degree of boys do have DDH, the higher percentage is in girls...if you know of a baby girl, or have one yourself, please look for the warning signs and look for a doctor that will listen to you. This situation is best diagnosed and treated prior to 6 mos of age.
The warning signs (that I know of) are:
XOXOXO
The Hip & Sassy Family
http://www.wfuhip.com/PAO.html
Most of the people that have had this surgery are women in their late twenties and early thirties. They go on to run marathons, have children, dance and the like. I have researched this a lot, and whenever I see their pre-op x-rays, I think..."WOW! I wish Bailey's would have looked like this...!" It seems that Bailey's case was quite a bit different than those that I have read about online. She had what I think they term a complete dislocation. She had NO hip socket at all, and all of the surgeries that she had when she was a toddler were to build a hip socket for her. I know that Bailey will go on to experience all of the great things in life, and she will be the topic of conversation by the pool with her surgical scars. (Which by the way, she is very eager to keep...!)
Bailey is certainly on the younger end of the spectrum for this surgery...but this was the last step before a total hip replacement. Below is her post op x-ray...
Now that Bailey is getting stronger, my quest will be to increase awareness and to rally for better testing. While I am told that a small degree of boys do have DDH, the higher percentage is in girls...if you know of a baby girl, or have one yourself, please look for the warning signs and look for a doctor that will listen to you. This situation is best diagnosed and treated prior to 6 mos of age.
The warning signs (that I know of) are:
- assymetrical thigh
- not putting any weight on that leg (when sitting up after crawling)
- a bowing and the hips when standing (hard to tell sometimes in the diaper...)
- an odd gait when they start to walk
XOXOXO
The Hip & Sassy Family
...and puppy makes 5...
Hip and Sassy Momma (or should I say CRAZY Momma?) made good on her promise of a puppy...and Bailey is just as pleased as punch! We introduced Gracie-Loo to the family last Thursday. (I call her Gracie-Loo Freebush...that annoys Bailey...making it all the more the fun!) :) She is a tiny chihuahua...with a BIG personality.
Gracie-Loo (Freebush) 1.6lbs.
Bailey, Miss Bevo & Gracie-Loo
We are counting the days for our next doctor appointment (during Spring Break)...Bailey is working hard everyday on exercising so that she can start therapy soon. She spends a lot of time making lists of the things she wants to do, and wear as well as the places she wants to go when she is well. I am so very proud of my baby...she has a great attitude and it seems that her recovery is coming along nicely. I know Gracie-Loo is helping a lot too!
Blessings to you and yours from me and mine!
XOXOXO
Hip and Sassy Momma
Monday, January 30, 2012
Public Service Announcement
Okay - allow me to get on my soapbox for a moment...but before I do, a quick Bailey update. She is doing well. She is "back to school" in that her homebound teacher is coming to the house now and she is getting caught up with her school work. Her pain is manageable...it was actually much better last week but now she is starting to move her leg more and seems that seems to be cause for some complaints.
Now, on to the soap box. Have you ever cruised a parking lot looking for a space and wondered where all the "handicapped" parkers have "run" off to? ME TOOO! More often than not we cannot find a handicap parking spot! We will park WAAAAAY out in the parking lot and unload and walk into the store or doctor office expecting to see a whole host of people in walkers, wheelchairs, and the like but I can't seem to find a one! Then you see those parkers (more often than not) getting into their cars on two good legs, with two good arms...I'm not a medical professional, but in my personal observation, I could see them walking a few extra steps from regular parking in addition to their perusal of LARGE discount department stores. Do they give these placards away like candy? THEN! Worse than that, you pull up to a restaurant or store that has a host of handicap parking and NO ACCESSIBILITY! You can't get in the door with a wheelchair, you can't access the restroom, the aisles and more! This just burns me up! I would really like to speak with the city/county to find out what the expectations are of public places and their accessibility.
Last thing...I have recently learned that the general population is overall a bit on the lazy side. I am unloading Bailey at Target for an outing (best place to kill some time and get rid of cabin fever) and this woman pushes and parks her cart right in the wheelchair lane! GRRRRR!
Honestly, I probably wouldn't have thought alot about this before I was forced to utilize these "services"...so this is my public service message. I cannot imagine those that are permanently disabled...how frustrating it must be for them! Not sure how to go about making changes...but it needs to happen.
XOXO Hip and Sassy Family
Now, on to the soap box. Have you ever cruised a parking lot looking for a space and wondered where all the "handicapped" parkers have "run" off to? ME TOOO! More often than not we cannot find a handicap parking spot! We will park WAAAAAY out in the parking lot and unload and walk into the store or doctor office expecting to see a whole host of people in walkers, wheelchairs, and the like but I can't seem to find a one! Then you see those parkers (more often than not) getting into their cars on two good legs, with two good arms...I'm not a medical professional, but in my personal observation, I could see them walking a few extra steps from regular parking in addition to their perusal of LARGE discount department stores. Do they give these placards away like candy? THEN! Worse than that, you pull up to a restaurant or store that has a host of handicap parking and NO ACCESSIBILITY! You can't get in the door with a wheelchair, you can't access the restroom, the aisles and more! This just burns me up! I would really like to speak with the city/county to find out what the expectations are of public places and their accessibility.
Last thing...I have recently learned that the general population is overall a bit on the lazy side. I am unloading Bailey at Target for an outing (best place to kill some time and get rid of cabin fever) and this woman pushes and parks her cart right in the wheelchair lane! GRRRRR!
Honestly, I probably wouldn't have thought alot about this before I was forced to utilize these "services"...so this is my public service message. I cannot imagine those that are permanently disabled...how frustrating it must be for them! Not sure how to go about making changes...but it needs to happen.
XOXO Hip and Sassy Family
Tuesday, January 24, 2012
Post Op Appointment and "I Stand Corrected"
Hooray! Here we are, two weeks post op and Bailey is doing great! Dr. Rosenfeld said she is right on track and making great progress. She will start physical therapy in 6 weeks.
Dr.Rosenfeld also mentioned (after reading this blog) that the surgery that was done at Shriners is a typical step in this process so the "undoing" of said surgery is typical. I stand corrected and I am greatly relieved to know that it wasn't a futile effort several years ago.
Many of you have asked what exactly is PAO surgery. I have found several links that I will post here soon.
Blessing from the Hip and Sassy family
Dr.Rosenfeld also mentioned (after reading this blog) that the surgery that was done at Shriners is a typical step in this process so the "undoing" of said surgery is typical. I stand corrected and I am greatly relieved to know that it wasn't a futile effort several years ago.
Many of you have asked what exactly is PAO surgery. I have found several links that I will post here soon.
Blessing from the Hip and Sassy family
Tuesday, January 17, 2012
Outings with my Mom :)
Well this is my 4th day at home and I have already shown A WHOLE LOT of progress. I have also already had 2 outings. I went to the mall and then to target,we had a lot of fun. :) Then late yesterday, my mom and I went to get our nails done and my Dad had to come with us. My Dad is big and strong and could help me and could be sure that I didn't slip or anything...but my mom and I also went to Starbucks first and we had to go through the drive-thru. My Dad was driving so he had to order the coffee and he said that he felt like his man card disapperaed whenever he ordered the coffee. My Mom and I were laughing when he had to throw them away in the parking-lot because he looked so "manly" with the little frapacinno coffees in his hands. (lol)
So far since I have been home I have been able to control my pain and I have been doing really well. I still have trouble sleeping at night because my legs hurt and hurt and the medicine doesn't help me all the time. I dont know if my Mom has told y'all yet...but while I was in the hospital and when I had my epideral crash and then hit the wall of pain... my Mom bribed me ... and it wasn't with money... it was with....(drum roll) ... a puppy! Now anyone who knows my Dad knows that he does not like animals very well... I already have a dog and she is Miss Bevo and she is 3 years old and is only 3 and 1/2 pounds... she is kind of a little high maintnence and she is my baby so she is very, very, VERY spoiled!!! she also gets her attidue from me. :) I was thinking that when I get a dog that it would be a maltese or a chihuahua or maybe I was thinking that I would call my dog's breeder and see if she has any more puppies. When I get the dog I was going to name her Addie Jean ... I chose that name because of my great grandmother who died 4 years ago and we were like 2 peas in the pod ... and I loved her sooooo much!!! I have always loved her name!!!! when I told my grandpa that he laughed and said that it would be weird to say his mothers name to a little dog. :) ... but other then that he likes it. :)
If any of y'all know a dog breeder or a dog shelter that has dogs under 10 pounds then please leave the name and number in the comment box... thanks :) and 'till my next post everyone stay safe and happy :)
y'alls friend,
Miss Hip and Sassy (Bailey)
So far since I have been home I have been able to control my pain and I have been doing really well. I still have trouble sleeping at night because my legs hurt and hurt and the medicine doesn't help me all the time. I dont know if my Mom has told y'all yet...but while I was in the hospital and when I had my epideral crash and then hit the wall of pain... my Mom bribed me ... and it wasn't with money... it was with....(drum roll) ... a puppy! Now anyone who knows my Dad knows that he does not like animals very well... I already have a dog and she is Miss Bevo and she is 3 years old and is only 3 and 1/2 pounds... she is kind of a little high maintnence and she is my baby so she is very, very, VERY spoiled!!! she also gets her attidue from me. :) I was thinking that when I get a dog that it would be a maltese or a chihuahua or maybe I was thinking that I would call my dog's breeder and see if she has any more puppies. When I get the dog I was going to name her Addie Jean ... I chose that name because of my great grandmother who died 4 years ago and we were like 2 peas in the pod ... and I loved her sooooo much!!! I have always loved her name!!!! when I told my grandpa that he laughed and said that it would be weird to say his mothers name to a little dog. :) ... but other then that he likes it. :)
If any of y'all know a dog breeder or a dog shelter that has dogs under 10 pounds then please leave the name and number in the comment box... thanks :) and 'till my next post everyone stay safe and happy :)
y'alls friend,
Miss Hip and Sassy (Bailey)
Monday, January 16, 2012
Some Days are Diamonds, and...
...some days are coal.
Here we are, Monday evening. Bailey has been home two full days. It is certainly a process to settle in...and I can see that she is really miserable. I can't blame her though...last Friday morning she was a very active 12 year old and then after about 7 hours in an operating room, and BOOM! No more activity. My hope is that she will begin to settle in and develop some interests that will distract her from her current situation.
Just when I think things are on the up-swing, we have some sort of set back. We are looking forward to some consecutive GOOD days. I have been keeping a mental tally of our "diamonds" and our "coal". I try to keep her focused on the "diamonds". Here's the tally from the last couple of days:
DIAMONDS:
We will begin her homebound schooling this week so before we start that, I think I will set up the computer for her tomorrow and let her type on the blog, so stay tuned. I am sure she has some different thoughts than I do! LOL
XOXOXO
The Hip and Sassys!
Here we are, Monday evening. Bailey has been home two full days. It is certainly a process to settle in...and I can see that she is really miserable. I can't blame her though...last Friday morning she was a very active 12 year old and then after about 7 hours in an operating room, and BOOM! No more activity. My hope is that she will begin to settle in and develop some interests that will distract her from her current situation.
Just when I think things are on the up-swing, we have some sort of set back. We are looking forward to some consecutive GOOD days. I have been keeping a mental tally of our "diamonds" and our "coal". I try to keep her focused on the "diamonds". Here's the tally from the last couple of days:
DIAMONDS:
- full control of the TV and DVD player in Mom's room
- got some mall air
- VERY close to being able to move her leg on her own
- figured out how to get in and out of car
- building strength and better able to move around house
- removed bandages for faster healing
- removed bandages and upset with what she saw
- muscle spasms so unable to sleep or get comfortable despite all the medication
- completely dependent upon Mom and hating every minute of it!
We will begin her homebound schooling this week so before we start that, I think I will set up the computer for her tomorrow and let her type on the blog, so stay tuned. I am sure she has some different thoughts than I do! LOL
XOXOXO
The Hip and Sassys!
Saturday, January 14, 2012
Home Sweet Home
Well, we made it home late yesterday. I'm not sure who was more excited, Bailey or Miss Bevo. I think that little dog grew some velcro while we were gone because everytime I turn around, she is stuck to Bailey.
Yesterday and last night were scary for Bailey and me. You forget how much you take your working limbs for granted. Getting in and out the car was a BIG issue and then figuring out how to move in the house, how to get from room to room, and more. Today was a really good day. She is moving around much better and seems to be in better spirits. Keeping our fingers crossed for another good day tomorrow!
My talented friend Rene of "The Personalized Touch" worked with Bailey before her surgery to "pimp her ride". Rene delivered a slip cover, hip pillow and seat cushion today, all custom made and full of pink, turquoise and zebra. The slip cover needs a few adjustments so as soon as we get that, I will post some pictures.
She is still not able to do much on her own, so I am her right hand, left hand and overall "go to gal" for EVERYTHING! We are having a slumber party in my room for a while until she is able to be more independent...plus, we have to wake up every few hours for various medicines.
Not sure that Hayden is enjoying her new role...but she is doing a GREAT job of helping me when I need it. Such special little girls I have been blessed with...I love them so much it make my heart swell.
Blessings to you and yours from me and mine!
XOXOXO
Yesterday and last night were scary for Bailey and me. You forget how much you take your working limbs for granted. Getting in and out the car was a BIG issue and then figuring out how to move in the house, how to get from room to room, and more. Today was a really good day. She is moving around much better and seems to be in better spirits. Keeping our fingers crossed for another good day tomorrow!
My talented friend Rene of "The Personalized Touch" worked with Bailey before her surgery to "pimp her ride". Rene delivered a slip cover, hip pillow and seat cushion today, all custom made and full of pink, turquoise and zebra. The slip cover needs a few adjustments so as soon as we get that, I will post some pictures.
She is still not able to do much on her own, so I am her right hand, left hand and overall "go to gal" for EVERYTHING! We are having a slumber party in my room for a while until she is able to be more independent...plus, we have to wake up every few hours for various medicines.
Not sure that Hayden is enjoying her new role...but she is doing a GREAT job of helping me when I need it. Such special little girls I have been blessed with...I love them so much it make my heart swell.
Blessings to you and yours from me and mine!
XOXOXO
Thursday, January 12, 2012
I AM COMING HOME!!!!!!!!!!!
WEEEEEEEEEEEEEEEEE!!!!!!!!!!!!!!!! I am coming home tomorow!!! Last night was a rough night for me... I had both of my IV'S out and I was a free woman!!! (lol) ...but then we found out that I was slowly losing blood and that I had to have another IV because they had to give me a blood transfusion... well then after that I got news that my doctor thought that my left leg had a blood clot and that I needed an ultra sound... well when I did that it was painful because she had to push really hard to see deep down in the veins... well that test failed so this morning I had to have another Ultra Sound... when we did that it was a little easier because they took off my band-aid that was from my knee to the bottoms of the ribs... but anyway today I woke up and I felt better and stronger and just like a different person! :) Later this afernoon physical therpy came and I got up and the lady told me what to do...I was scared because I haven't trusted myself this whole week...but when I stood up and put my bad heel on my good foot and used my arms to push up and hop... then when I did it I felt so good and I was sooo proud!!! So now if I can do that in the morning then I can go home :)
Well when I get home I will blog some more and then I will post pics to keep all of y'all posted! :)
your friend,
Miss Hip and Sassy (Bailey) :):):):) see y'all soon :)
Well when I get home I will blog some more and then I will post pics to keep all of y'all posted! :)
your friend,
Miss Hip and Sassy (Bailey) :):):):) see y'all soon :)
If life is a carnival ride...
....we need more cotton candy!
After such a turn around with the bribery of a new dog, yesterday was a different story.
Despite her best efforts, and winning attitude it just didn't seem that she could do much at all. She was very lethargic and miserable. Insult was added to injury when she was told she may have a blood clot. We had a VERY big cry, and a call to Daddy to come up and help us. We did some very late night (painful) tests and again this morning and got good news...no clot! She did receive a transfusion last night and looks better today. She has alot more energy and a little color in her face.
She worked with physical therapy and made great strides in re-learning her walking today. SOOOOOOOOOOO......drum roll please....if we can manage her pain tonight and she can walk well with her therapist tomorrow, we can go home!!!! Yay!
Xoxoxo
Blessings from us to you!
After such a turn around with the bribery of a new dog, yesterday was a different story.
Despite her best efforts, and winning attitude it just didn't seem that she could do much at all. She was very lethargic and miserable. Insult was added to injury when she was told she may have a blood clot. We had a VERY big cry, and a call to Daddy to come up and help us. We did some very late night (painful) tests and again this morning and got good news...no clot! She did receive a transfusion last night and looks better today. She has alot more energy and a little color in her face.
She worked with physical therapy and made great strides in re-learning her walking today. SOOOOOOOOOOO......drum roll please....if we can manage her pain tonight and she can walk well with her therapist tomorrow, we can go home!!!! Yay!
Xoxoxo
Blessings from us to you!
Tuesday, January 10, 2012
What A Difference A Day Makes!
PHEEWW! What a difference a day makes! Yesterday was a day that shouldn't EVER be repeated! In short, physical therapy had her in the wheelchair and out in the hall so her bedding could be changed. The battery in her epidural machine went out and when the nurse replaced it, something happened (or didn't happen) and the medicine was never restarted! SO! Bailey hit the wall of pain and hit it HARD! The pain overtook her and she really wrestled with it for HOURS! We called in reinforcements (AKA Granna) and between the three of us, we made it through the night and she was able to rest for a few hours.
This morning started off pretty much the same...UNTIL...!!!! Momma pulled out a little bribery involving a potential new pet. This was all she needed...something to look forward to and focus on. From that moment on, she ate, took her meds and worked really hard to get up and do all that was asked of her.
AHHHH-MAAAZING!!!
Her hemo-vac was removed and so was her epidural. We still need to have bandages changed and shower. Bailey still needs to work hard to learn how to walk with her walker. She will spend most of her time in the wheelchair, but needs to know how to walk for short distances. She may still require a blood transfusion, we are waiting to hear.
Here's hoping tomorrow is even better than today! Thanks again to everyone...much love!
Miss Hip & Sassy and Hip & Sassy Momma
This morning started off pretty much the same...UNTIL...!!!! Momma pulled out a little bribery involving a potential new pet. This was all she needed...something to look forward to and focus on. From that moment on, she ate, took her meds and worked really hard to get up and do all that was asked of her.
AHHHH-MAAAZING!!!
Her hemo-vac was removed and so was her epidural. We still need to have bandages changed and shower. Bailey still needs to work hard to learn how to walk with her walker. She will spend most of her time in the wheelchair, but needs to know how to walk for short distances. She may still require a blood transfusion, we are waiting to hear.
Here's hoping tomorrow is even better than today! Thanks again to everyone...much love!
Miss Hip & Sassy and Hip & Sassy Momma
No Words.... Post op day 3
I have only had a moment to think about a posting. I really have no words that are a PG rating...yesterday was a nightmare. She is resting a little now...more updates to follow.
Thank you for your calls, texts, comments, etc. and thanks for understanding that I'm not always able to return your calls.
XOXO
Thank you for your calls, texts, comments, etc. and thanks for understanding that I'm not always able to return your calls.
XOXO
Sunday, January 8, 2012
Only rainbows after rain... Post Op Day 2
So I dozed off for about 30 minutes last night and when I woke up all I could think of was the song by Andy Grammer "Keep Your Head Up"; but more specifically I just kept repeating the line, "...only rainbows after rain..."
I keep telling Bailey that when she was admitted to the hospital, she had a bunch of hurdles set up in front of her. With each effort, she is knocking them down...one at a time.
Hurdle 1: surgery
Hurdle 2: recovery
Hurdle 3: sitting on the side of the bed
Hurdle 4: getting into a wheelchair and seeing the other side of her hospital door
Neither of us are really sure how many hurdles are set up in front of her. Both of us (for only fleeting moments) question if we are up for the task...me for very different reasons...I just wish I could turn back the clock, do things differently, or at least take the pain for her. Bailey's reasons are because she is anxious because she hates to be confined, anticipates the pain, and she is REALLY missing her lil Miss Bevo. BUT! As the song goes, "only rainbows after rain". We are looking forward to better days full of nail appointments and Starbucks caramel frapacinnos.
Last night was a fairly pain-free night so she was able to sleep. Today, however, has been a completely different story. They turned down her epidural and she is certainly feeling it. She had lots of visitors today and felt like a princess. She is certainly getting her appetite back which is a great sign! I know with her renewed appetite and her amazing tenacity she will be tooling around in her wheelchair sans momma in no time!
Xoxo from Hip and Sassy Momma & Miss Hip and Sassy
I keep telling Bailey that when she was admitted to the hospital, she had a bunch of hurdles set up in front of her. With each effort, she is knocking them down...one at a time.
Hurdle 1: surgery
Hurdle 2: recovery
Hurdle 3: sitting on the side of the bed
Hurdle 4: getting into a wheelchair and seeing the other side of her hospital door
Neither of us are really sure how many hurdles are set up in front of her. Both of us (for only fleeting moments) question if we are up for the task...me for very different reasons...I just wish I could turn back the clock, do things differently, or at least take the pain for her. Bailey's reasons are because she is anxious because she hates to be confined, anticipates the pain, and she is REALLY missing her lil Miss Bevo. BUT! As the song goes, "only rainbows after rain". We are looking forward to better days full of nail appointments and Starbucks caramel frapacinnos.
Last night was a fairly pain-free night so she was able to sleep. Today, however, has been a completely different story. They turned down her epidural and she is certainly feeling it. She had lots of visitors today and felt like a princess. She is certainly getting her appetite back which is a great sign! I know with her renewed appetite and her amazing tenacity she will be tooling around in her wheelchair sans momma in no time!
Xoxo from Hip and Sassy Momma & Miss Hip and Sassy
Saturday, January 7, 2012
Post Op Day 1
Bailey was in surgery for nearly 7 hours. While Dr. Rosenfeld indicated that she would never have a normal hip, and will more than likely require a hip replacement at some point in her life...he is pleased with what they were able to accomplish. She has more coverage for the femur.
There was considerable scar tissue to battle and tame before he could manipulate and cut the bones. With all said and done, she has a plate and 4 screws in her pelvis and a plate and 7 screws in her femur. As long as the hardware isn't bothering her, it can stay in.
Last night was rough, to say the least. The good news is that she isn't in any pain. The bad news is that with the epidural and the amount of time spent in surgery, the anesthesia and other meds are really reeking havoc. (I will spare some of the the details here.) She is experiencing vertigo and has only been able to drink some Gatorade this morning.
Today, she is trying to rest. As soon as she gets some feeling back in her legs, they will get her up and moving around. We are supposed to have her sitting up by lunch time today...fingers crossed.
She is a trooper....and winning the hearts of her caregivers. She is truly my hero, experiencing so much at such a young age and maintaining her poise and grace throughout.
Love from the Hip and Sassy family. Xoxoxo
There was considerable scar tissue to battle and tame before he could manipulate and cut the bones. With all said and done, she has a plate and 4 screws in her pelvis and a plate and 7 screws in her femur. As long as the hardware isn't bothering her, it can stay in.
Last night was rough, to say the least. The good news is that she isn't in any pain. The bad news is that with the epidural and the amount of time spent in surgery, the anesthesia and other meds are really reeking havoc. (I will spare some of the the details here.) She is experiencing vertigo and has only been able to drink some Gatorade this morning.
Today, she is trying to rest. As soon as she gets some feeling back in her legs, they will get her up and moving around. We are supposed to have her sitting up by lunch time today...fingers crossed.
She is a trooper....and winning the hearts of her caregivers. She is truly my hero, experiencing so much at such a young age and maintaining her poise and grace throughout.
Love from the Hip and Sassy family. Xoxoxo
Friday, January 6, 2012
Surgery day
Well, it is 12:30 and they have just taken her back for surgery. It will be between 5-7 hours.
Bailey has done so well this morning, only crying when the surgeon made his appearance...that was just all too real for her. We opted for the epidural since she has so many problems with anesthesia and with her allergy to morphine. They still say they will get her up and moving tomorrow.
Thank you all for your messages today and your prayers. This surgery is pretty big...cutting several bones...I pray for a steady hand for the surgeon, having to work around some major nerves in the pelvic and femoral area.
She is set on getting out of her room tomorrow and going to the food court for Chick Fil A...I told her she could have Chick Fil A 8 times a day if she was up for it! She is going to see how close she can get to that number...
More updates to follow...xoxo The Hip and Sassy family.
Bailey has done so well this morning, only crying when the surgeon made his appearance...that was just all too real for her. We opted for the epidural since she has so many problems with anesthesia and with her allergy to morphine. They still say they will get her up and moving tomorrow.
Thank you all for your messages today and your prayers. This surgery is pretty big...cutting several bones...I pray for a steady hand for the surgeon, having to work around some major nerves in the pelvic and femoral area.
She is set on getting out of her room tomorrow and going to the food court for Chick Fil A...I told her she could have Chick Fil A 8 times a day if she was up for it! She is going to see how close she can get to that number...
More updates to follow...xoxo The Hip and Sassy family.
Wednesday, January 4, 2012
The Countdown
Wheelchair? Check! Pajamas? Check! Snacks and things to keep a 12 yr old busy? Check! Momma's sanity? Momma's sanity? Where oh where is Momma's sanity? :0
First, a HUGE thank you to all that supported Bailey at the blood drive last Friday. I heard that it was the most successful blood drive in HPD NW history. The wait time was over an hour for most...we are truly touched by your generosity.
The countdown has begun. Bailey is in good spirits. She has been staying with her Oma while I work this week, doing her hair and nails. (Oma has never looked so pretty.) She will stay home with Daddy tomorrow as we await the call from the hospital to tell us when to arrive.
Hayden is spending time loving on her sister...it may look to the average person like she is arguing and picking a fight with her...but I know it's love! LOL
Thank you to you all for your continued prayers and thoughts. I will update with regard to her progress via this blog.
Blessings to you and yours from me and mine!
XOXO
Hip and Sassy Momma
First, a HUGE thank you to all that supported Bailey at the blood drive last Friday. I heard that it was the most successful blood drive in HPD NW history. The wait time was over an hour for most...we are truly touched by your generosity.
The countdown has begun. Bailey is in good spirits. She has been staying with her Oma while I work this week, doing her hair and nails. (Oma has never looked so pretty.) She will stay home with Daddy tomorrow as we await the call from the hospital to tell us when to arrive.
Hayden is spending time loving on her sister...it may look to the average person like she is arguing and picking a fight with her...but I know it's love! LOL
Thank you to you all for your continued prayers and thoughts. I will update with regard to her progress via this blog.
Blessings to you and yours from me and mine!
XOXO
Hip and Sassy Momma
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